27. Author interview Kypros Nicolaides, 2017.

28. Author interview Pranav Pandya, 2018.

29. Olav Lepaire et al., ‘Non- Invasive Screening and Diagnosis from Maternal Blood’, in Rodeck and Whittle, Foetal Medicine, p 283.

30. https://www.technologyreview.com/s/513691/prenatal-dna-sequencing, accessed 17 May 2018.

31. National Congenital Anomaly and Rare Disease Registration Service (NCARDRS) figures 2014, reported by Sarah Stevens, Public Health Consultant, Registry lead, NCARDRS.

32. https://www.cbsnews.com/news/down-syndrome-iceland, accessed 2 May 2018.

33. https://www.gov.uk/ government/uploads/system/uploads/attachment_data/file/652083/Abortion_stats_England_ Wales_2016.pdf, accessed 31 January 2018.

34. https://www.bpas.org/ abortion-care/abortion-treatments/the-abortion-pill/feticide, accessed 13 July 2018.

35. Margaret Wynn, Prevention of Handicap and the Health of Women, Routledge, 1979, pp 12–13.

36. https://www. downs-syndrome.org.uk/about/general/, accessed 6 February 2018.

37. https://www.thecut.com/2017/11/raising-child-with- cystic-fibrosis.html?_ga=2.177052709.1238175379. 1547118530-812552985.1501236218, accessed 13 January 2019.

38. https://www.natera.com/press-releases/natera-inc- announces-launch-vistara-single-gene-mutation-nipt, accessed 17 January 2018.

39. https://www.mothercare.com/babybond.html, accessed 10 January 2019.

40. https://www.nhs.uk/conditions/klinefelters-syndrome/, accessed 17 May 2018.

41. https://www.technologyreview.com/s/513691/prenatal-dna-sequencing, accessed 17 May 2018.

ГЛАВА 7. «МАМА»

1. Koop, Koop: The Memoirs of America’s Family Doctor, p 117.

2. Budin, The Nursling, p 68.

3. Koop, Koop: The Memoirs of America’s Family Doctor, p 104.

4. Budin, The Nursling, p 13.

5. Budin, The Nursling, p 36.

6. Budin, The Nursling, p 36.

7. Hess, Premature and Congenitally Diseased Infants, p 126.

8. Crosse, The Premature Baby, pp 57–8.

9. https://www.theatlantic.com/health/archive/2017/ 02/ kangaroo-care/515844/, accessed 11 April 2018.

10. https://www.laleche.org.uk/ meeting-needs-premature-babies-kangaroo-mother-care/, accessed 11 January 2018.

11. https://www.todaysparent.com/baby/ newborn-care/ preemie-care-now-in-hands-of-parents, accessed 11 April 2018.

12. Dally, Women under the Knife, Introduction.

13. Newman, Fetal Positions, p 51.

14. Newman, Fetal Positions, p 61.

ГЛАВА 8. ОПЕРАЦИЯ

1. Kate Bull, Open Hearts, Elliott & Thompson, 2016, p 215.

2. Musemuche, Small, p 11.

3. Bull, Open Hearts, p 175.

4. Bull, Open Hearts, p 32.

5. https://www.achaheart.org/ your-heart/health-information/tetralogy- of-fallot, accessed 3 May 2018.

6. Koop, Koop: The Memoirs of America’s Family Doctor, p 75.

7. John G Raffensberger, Children’s Surgery: A Worldwide History, McFarland & Co., 2012, p 53.

8. Raffensberger, Children’s Surgery, p 77.

9. Koop, Koop: The Memoirs of America’s Family Doctor, p 76.

10. Musemuche, Small, pp 23–5.

11. Details about Koop from Koop, Koop: The Memoirs of America’s Family Doctor, pp 76-117.

12. Bull, Open Hearts, p 174.

13. Bull, Open Hearts, p 99.

14. Musemuche, Small, p 18.

15. Author interview Martin Elliott, 2017.

16. Author interview Martin Elliott, 2017.

17. Martin Elliott, ‘The Size of a Walnut: Your Heart in their Hands’, lecture, Gresham College, 25 May 2016.

18. Bull, Open Hearts p 130.

19. Bull, Open Hearts, p 22.

20. E Kirmisson, A Handbook of the Surgery of Children, Hodder & Stoughton, 1910, p 806.

21. Author interview Alex Robertson, 2018.

ГЛАВА 9. ЧТО БЫЛО ДАЛЬШЕ

1. https://www.dailysignal.com/2014/12/09/elijahs-story-life-saved-birth, accessed 5 May 2018.

2. https://www.thetimes.co.uk/article/my-nightmare- in-hospital-ptb9rnb6drk, accessed 28 March 2018.

3. Author interview with Judith Meek, 2015.

4. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3820298, accessed 5 May 2018.

5. http://www.epicure.ac.uk/overview/main-challenges/, accessed 19 January 2019.

6. https://www.telegraph.co.uk/news/science/science- news/12156081/Premature-babies-set-back-by-dungeon-incubators.html, accessed 5 May 2018.

7. https://www.seminperinat.com/article/ S0146-0005 (16) 30080-5/abstract?cc=y=, accessed 5 May 2018.

8. http://www. sec-ed.co.uk/best-practice/the-emerging-new-sens-of-students-born-prematurely, accessed 5 May 2018.

9. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3820298, accessed 5 May 2018.

10. http://www.biomedcentral.com/ 1471–2431/13/25, accessed 5 May 2018.

11. Author interview Neil Marlow, 2016.

12. Alessandra Piontelli, From Foetus to Child: An Observational and Psychoanalytic Study, Routledge, 1992.

13. Sigmund Freud, Inhibitions, Symptoms and Anxiety (first published 1925), in Standard Edition of the Complete Psychological Works of Sigmund Freud, Vol. 20, Vintage Classics, 2001, p 138.

14. Koop, Koop: The Memoirs of America’s Family Doctor, p 246.

15. Stephanie Nimmo, Was This in the Plan?, Hashtag Press, 2017 and Stephanie Nimmo, Goodbye Daisy, Hashtag Press, 2018 and wasthisintheplan.co.uk

16. Author interview Mark Johnson, 2018.

ГЛАВА 10. ЗНАНИЕ

1. https://www.natera.com/press-releases/naterainc-announces-launch-vistara-single-gene-mutation-nipt, accessed 7 January 2018.

2. Brown, The Boy in the Moon, p 75.

3. https://www.theguardian.com/commentisfree/ 2017/jul/12/charlie-gard-doctors-speak-out-hospital-staff?CMP=fb_gu, accessed 13 July 2018.

4. https://www.nejm.org/doi/pdf/10.1056/NEJM 199612123352404, accessed 17 August 2018.

5. Author interview Mark Johnson, 2018.